Fortsätt till huvudinnehåll

I know don't say it....

I have been very bad ;-) I just realized I haven't written for almost 2 weeks. Well what can I say? By the time I sit down here by the computer I'm so tired I don't have the the time or can be awake so long that I can write something down :-( It's terrible I know and I don't know when it's going to get better.
This is how I feel when not writing

It's not just that I do too much. It's also my multi diagnosis which makes me extremely fatigue. As you know I have SS, that is Sjogren's syndrome a rheumatic disease, as well as Fibromyalgia, IBS, arthritis and some more.
And this autumn and winter has been too much since I've been in a relapse. But now it seems like it has turned, after lot of medication, so hopefully as it's getting better and the light in this country is coming back, I too will feel better and more energetic.

We in Sweden want to see this happy sun :-) soon.

Enough about the moaning now! You remember I last told you about the win? I won a trip to Paris. But we changed our minds me and Hasse. I have now booked us a trip to - Prague! We go on May 27 for 5 days :-) We are so looking forward to that. Prague is said to be a wonderful city and just as romantic as Paris ;-)
Prague

Last weekend we had board meeting conference with the newly elected board. We were at Tre Rosor, Rosersberg (my former workplace) and we had a wonderful time. We have 4 new members on the board, all very nice and eager to work.


What has happened more than that? Well, H.E.A.T has been on a European success tour including Germany, England, Scotland and Spain.
Great reviews, sold out in London and they had to change to bigger venues both in Madrid and Barcelona. I so wish I could have been there especially in Barcelona where Jonas for the third time met his cousin which I haven't
met :-(

 My son Jona in action (H.E.A.T action)

Today I visited my Mom and Danniel took a walk and joined us which was very nice. It was a pleasure to be with her today because she was in such a good mood. She talked a lot in different languages (though we don't understand what she says :-( which is sad), she sang, she wanted me to sing (!), she clapped her hands and she wanted to hold my hand.

 My oldest son Danniel and my Mother

Yesterday I was in Norrtälje to see my good friend Anne for some treatment, chatting and lunching :-) I haven't been to see her for such a long time due to me being so ill the last six months but finally I got to see her again.
We always have so much to talk about :-) One other funny thing that happened when we had our lunch at Havspiren is that my former chief from my guide days were there! She owned the travel agency where I used to work and I haven't seen her in probably 20 years :-) So nice to meet her :-)
Me yesterday in Norrtälje :-)

Well, that's about it for now (there has of course happened more but nothing out of the ordinary) Take care everyone!


Kommentarer

Populära inlägg i den här bloggen

Anyone??

I wonder if anyone can see and read my blogg? I haven't had any comments in so long that's why I ask. Erik didn't win a Grammy last night but he had a blast and he and his fiancé looked just great! Another Swede, Ludwig Göransson, won 3 prices though. Congrats to him.

Hello December

This month started with a tax education, yeah :-) in Uppsala. Since we don't have a goverment yet due to the chaotic political scene after the election, no one actually knows what's going to happen with taxes. It's just guesses. The day after we had Christmas celebration at the Rheumatic district of Stockholm. It was a lot of fun, good food and nice to meet everyone :-) And on Saturday it was time for Christmas lunch with my own Rheumatic local association. We were around 30 members incl. Eddie and Mandy. We had a lot of good food and we had the party at a local hotel here in Väsby in Bredden. There were two other children there so I bought them each a Christmas gift and they were very happy for what they got from the Rheumatic Santa Claus. Me decorating a board member with a honoray sign Eddie and the palm tree Some of the Christmas bord I haven't been feeling well for a couple of months. I have had fever now and then, headache, runny nose, ey...

New month and new challenges

Since I last wrote I have had boardmeeting at my work where I sit on the board. I have had audit for the Rheumatic association which went well.  We have also had our first of the year member meeting and the theme this time was Fibromyalgia and Morbus Dercum (a rare disease) and as usual I made a good healthy soup and to that we serve bread, cheese, water, coffee with something sweet too.   They don't look that happy but we had just eaten and it's serioud matters we discuss I have also had audit at work which also went very well and is extremely early. I have attended a board meeting with the Rheumatic assocation district Stockholm. I went to my hairstylist since it was long overdue. My hairstylist has truly became a very good and dear friend. We have similar backgrounds and we have children that are artists. Her daughter is a singer and show host on one of the cruise ships on the Baltic Sea and I have Jonas. We have so much fun toghether she and I and we have eve...